Duchenne and You is a resource dedicated to those who have had their lives touched by Duchenne muscular dystrophy (DMD).
Whether your child or young person has been diagnosed with DMD, or you are worried that they might be showing symptoms, you have come to the right place.
As a source of knowledge and ongoing support, we will help you find out what to expect and what to do next.
Duchenne is a rare condition that mainly affects ~1 out of every 3,600–6,000 live male births
Early signs and symptoms of Duchenne muscular dystrophy may appear before a child’s second birthday
Being aware of developmental milestones is an important consideration for your child’s health. While developmental delay may be nothing to worry about, it can sometimes be a sign of a muscle disorder
It is estimated that about 20,000 children are diagnosed with Duchenne globally each year.
The most common forms in children, Duchenne and Becker, affect approximately 1 in every 5,600 to 7,700 males ages 5 to 24
Whilst there is no cure for Duchenne, management and treatment options may help delay or slow disease progression and improve quality of life
(excluding UK and Ireland)
Not a healthcare professional but want to know more? Visit Duchenne and You for more information on signs and symptoms of Duchenne, diagnosis and support following a Duchenne diagnosis
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