Why education is so important

If your child or young person has DMD, the thought of sending them to school can be daunting. You may worry about them falling, being bullied or going through the unnecessary stress of exams and other assignments.

While it is perfectly normal for parents, caregivers, teachers and even the child with DMD to have fears around school, it is important to understand that they are not always based on reality.

Separating fact from fiction can make a huge difference in helping your child or young person get the best educational experience possible.

Assumption

Because my child or young person has DMD, they will be better off in a special education school

Reality^2,3

While you may think that a DMD diagnosis means attending a special education school, if possible children with DMD should attend mainstream schools. This is so that children with the condition can experience and learn from the ‘real world’.

However, keep in mind that, as the disease progresses, an alternative or specialised school that can support the needs of your child or young person may be your best option.

Assumption

Because my child or young person has DMD, they should not participate in school activities or trips

Reality^1–3

Having DMD does not mean that your child or young person should be excluded from participating in school activities.

Openly discuss your child or young person’s capabilities and limitations with the school. Together, you can decide whether any modifications or special adjustments can be made. For example, building ramps for wheelchairs, providing more time for exams or finding games that do not require physical strength.

Assumption

My child or young person will be teased or bullied about DMD

Reality^1–3

Research has shown that children are less likely to tease and more likely to defend a student with DMD when they understand the condition. Talk to the school about how to raise the topic of DMD with other students.

To help teachers discuss DMD in the classroom, refer them to Parent Project Muscular Dystrophy’s resources for teachers here.

Assumption

The teacher will know exactly what to do

Reality^1,2

This may or may not be the first time your child or young person’s teacher has had a student with Duchenne in their class. Be prepared to openly discuss your child or young person’s condition and provide teachers with guidance and information about Duchenne.

To help inform teachers about Duchenne, refer them to Parent Project Muscular Dystrophy’s resources for teachers here.

Assumption

My child or young person will not be able to keep up with their classmates

Reality^1,3

While it is true that children with DMD may need assistance with physical activities and help to address learning disabilities, they can still follow the classroom curriculum and participate in class activities.

Rather than focusing on the disability and what the student cannot do, focus on what the student can do. Work with your child or young person’s teacher to set realistic goals and focus on the student’s strengths. You could also talk to the school about developing an individualised education programme (IEP).

To help teachers understand DMD and meet your or your young person’s needs in the classroom, refer them to Parent Project Muscular Dystrophy’s resources for teachers here.

To learn more about how to talk to teachers and school staff, look at Parent Project Muscular Dystrophy’s ‘Education Matters’ guides, here. These guides are aimed at parents and teachers, and are organised by age group.