Reach out to the Duchenne muscular dystrophy community

You are not alone facing the challenges of Duchenne muscular dystrophy (DMD). Within your country there will be a number of patient organisations and groups that you can go to for more information and support relevant to your local country.

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare disease in Europe and beyond.

World Duchenne Organization

The World Duchenne Organization is an advocacy group managed organisation set up by parents and families of those with DMD around the world.

European Alliance of Neuromuscular Disorders Associations

The European Alliance of Neuromuscular Disorders Associations (EAMDA) is a non-profit umbrella organisation that connects together neuromuscular disorders associations across the European Union.

Local organisations

This list shows groups available in your country. Please note this is not an exhaustive list and there may be other organisations not listed here for your country.

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