Reach out to the Duchenne muscular dystrophy community

You are not alone facing the challenges of Duchenne muscular dystrophy (DMD). Within your country there will be a number of patient organisations and groups that you can go to for more information and support relevant to your local country.
EURORDIS

EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare disease in Europe and beyond. http://www.eurordis.org/

World Duchenne Organization

The World Duchenne Organization is an advocacy group managed organisation set up by parents and families of those with DMD around the world. https://worldduchenne.org/

European Alliance of Neuromuscular Disorders Associations

The European Alliance of Neuromuscular Disorders Associations (EAMDA) is a non-profit umbrella organisation that connects together neuromuscular disorders associations across the European Union. http://www.eamda.eu/

Local organisations

This list shows groups available in your country. Please note this is not an exhaustive list and there may be other organisations not listed here for your country.

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