EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare disease in Europe and beyond. http://www.eurordis.org/
The World Duchenne Organization is an advocacy group managed organisation set up by parents and families of those with DMD around the world. https://worldduchenne.org/
The European Alliance of Neuromuscular Disorders Associations (EAMDA) is a non-profit umbrella organisation that connects together neuromuscular disorders associations across the European Union. http://www.eamda.eu/
This list shows groups available in your country. Please note this is not an exhaustive list and there may be other organisations not listed here for your country.
(excluding UK and Ireland)
Not a healthcare professional but want to know more? Visit Duchenne and You for more information on signs and symptoms of Duchenne, diagnosis and support following a Duchenne diagnosis
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