Living with Duchenne

Life does not stop with a Duchenne muscular dystrophy (DMD) diagnosis. Despite the challenges of living with DMD, it is possible to have a productive, creative and fulfilling life.

In this section, learn how certain lifestyle adjustments can help people with DMD live productive and fulfilling lives despite the associated challenges. Find out what adaptations can be made to enable children with DMD to participate in school as fully as possible, so they can enjoy the same learning and aspirations as any other child.

Talking to others about having DMD can be daunting, in this section we also provide you with some tips on deciding who to tell, where to start, how to explain what it is like to live with DMD, answering questions, and importantly, responding to people’s reactions.

Read the following articles about living with DMD and discover ways to make this an easier experience.

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Living with Duchenne
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DID YOU KNOW..?

Life does not stop with a diagnosis of Duchenne muscular dystrophy (DMD). Despite the challenges of living with DMD, it is possible to have a productive, creative and fulfilling life

Keeping independence: How lifestyle adjustments and adaptive technologies can help

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Breaking the news: Five tips to make telling friends and family members about Duchenne easier

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School: Duchenne and school – what you need to know

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Duchenne life hacks: Practical tips and tricks to make life easier

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DID YOU KNOW..?

When all those involved in a child’s care work together, the challenges of Duchenne muscular dystrophy can be easier to deal with

Finding support: Why you need it and how to get it

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