How your care team will help you

Receiving a diagnosis of Duchenne muscular dystrophy (DMD) can be difficult, but you are not alone. Your care team is there for you and will be able to offer information and support as you need it, so please reach out to them.

Your DMD care team may include:


A doctor who specialises in conditions that affect the brain, spinal cord and nerves. This doctor often directs and coordinates the DMD care team.

Physical therapist1,2,4

A health professional who works with patients to improve muscle and joint function.

Occupational therapist1,2,4

A health professional who helps children develop the skills to perform everyday activities.

Orthopaedic physician1,2

A doctor who specialises in bone and joint disorders.


A doctor who specialises in diseases of the heart and blood vessels.

Respiratory physician1,2

A doctor who specialises in diseases of the lungs.

Clinical nurse specialist3

A nurse who specialises in providing care for patients with DMD.

Regional care advisor1,3

A professional who provides social, psychological, emotional and practical support for patients and families with DMD. They also provide guidance on services, equipment and funding.

Social worker / psychologist / psychiatrist1,2,4

A professional who helps families adjust to a DMD diagnosis, putting them in touch with services they might need and working with schools to make sure they have the right equipment and systems in place.

Genetic counsellor1

A health professional who specialises in medical genetics and counselling.


A health professional who provides nutritional therapy and/or advice to patients and their families.

Adapted from Birnkrant et al. 2018,1 Birnkrant et al. 20182 and Muscular Dystrophy UK3

Ask your doctor to put you in touch with your care team. This is the group of specialists who work together to provide the best and most appropriate care for the person with DMD

1. Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267 [Part 1].
2. Muscular Dystrophy UK. Care advisors and clinical nurse specialists. Available at [last accessed March 2021].
3. Birnkrant DJ, et al. Lancet Neurol. 2018;17:347–361 [Part 2].
4. Birnkrant DJ, et al. Lancet Neurol. 2018;17:445–455 [Part 3].

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