There are two types of personal support networks and you should make use of both:
Formal support networks1,3
Support from healthcare professionals, patient groups and professional organisations.
Having a strong network of supportive people that you can trust and fall back on means that you can:
It can be easy – albeit unintentionally – to give less time to your friends and other loved ones after a DMD diagnosis. You may find yourself busy taking care of your family, your priorities may change or you may feel too emotionally drained to see other people. However, making time to maintain your support network is critical.
Unsure about where to start? Ask your family doctor to refer you to a social worker or counsellor, and take a look at the DMD support groups available to you below.
You are not alone facing the challenges of DMD. Within your country, there will be a number of patient organisations and groups that you can go to for more information and support relevant to your local country.
Find out what support groups are available in your country here.
Find the support you need to help live a life with DMD. Read below to find out about patient organisations and groups that you can go to for more information and support relevant to your local country
(excluding UK and Ireland)
Not a healthcare professional but want to know more? Visit Duchenne and You for more information on signs and symptoms of Duchenne, diagnosis and support following a Duchenne diagnosis
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