In general, both adults and children can better deal with a situation if they feel they understand it. That is why it is important to provide the right amount of information about DMD and be willing to explain what it all means.
It is important to stress that DMD is nobody’s fault. Explain that DMD is a disease that people are born with. Reassure your loved ones that nothing anyone did or did not do could have caused DMD.
Try to create an environment where people feel safe asking questions and sharing feelings. This is particularly important for children, as questions enable you to correct misunderstandings and help them express feelings.
Communicate what feels right for you and/or your loved one, and listen to what others tell you works for them.
Use these tips to help break the news about DMD
(excluding UK and Ireland)
Not a healthcare professional but want to know more? Visit Duchenne and You for more information on signs and symptoms of Duchenne, diagnosis and support following a Duchenne diagnosis
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