Duchenne Treatment & Care

There are several stages in the Duchenne muscular dystrophy (DMD) journey, starting with recognising the signs and symptoms, working through receiving a diagnosis and moving on to how parents and carers can work with the medical team to decide on the best treatment options and ongoing support to ensure their child or young person has the best chance of fulfilling their potential.1–3

The information in this section will help you navigate this journey by discussing the two main types of treatments available for DMD – medications and supportive care.1–3 In each case, the different options are discussed, together with the reasons for each medication or other care. There is information on what makes a multidisciplinary team, and why working together this way provides the best possible care.1,3 The article also talks about what the different healthcare professionals who make up the team do, and how they each provide specialist support to your family.

  1. Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267 [Part 1].
  2. van Ruiten HJ, et al. Arch Dis Child. 2014;99:1074–1077.
  3. Bushby K, et al. Lancet Neurol. 2010;9:77–93.
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DID YOU KNOW..?

Timely management and treatment intervention may help delay or slow disease progression and improve quality of life

Treating Duchenne: Importance of timely intervention

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Treatment options: Learn more about Duchenne treatments and supportive care options

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Your care team: Find out which healthcare professionals are involved in a Duchenne muscular dystrophy care team

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Videos: Physiotherapy exercises for Duchenne

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Resources: Physiotherapy stretching books & guides

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DID YOU KNOW..?

Because Duchenne muscular dystrophy can be caused by different types of gene changes, different treatments may be needed

What to expect with Duchenne muscular dystrophy

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